Friday, September 5, 2014

Our fabulous surgeon called this morning. I have a special place in my heart for that man.
The tissue that is in Maddie's joints is cartilage, and there is a lot of it. To recap: If they take the cartilage out, that removes the cushiony material in her joints, thus giving her arthritis at the age of 2.
He also said that even if he could get the femoral head in the joint, it would likely slip out due to the fact that Maddie's sockets are almost non-existent. She just didn't form them (both hips).
Enter Dr. Stuart Weinstein--the Internationally renowned pediatric hip guru. He is from Iowa City. Our surgeon, Dr. Loder, is going to send Maddie's films to him for a consultation and we will be hearing from him in a couple of weeks based on his findings. He may be privy to some cutting edge hip dysplasia treatment for rare cases like Maddie. I look forward to hearing from them.
For now, I'm breathing normal again. I don't jump every time my phone rings hoping it's Riley with results. I am not taking the phone with me to the restroom in case they call so I don't miss it (how I would have managed that, I'm not sure...pee quickly???) Our family loves our sweet little Maddie. That is all :)

I also wanted to announce our best and most fun fundraiser to date: Maddie's Walk Dinner and Dance! The event will be on Saturday, November 1st at Princeton Country Club starting at 5PM, ending at 11PM. We will have a 50/50 drawing and items up for raffle as well. We have a LOT of awesome donations that came our way for this event: lots of restaurant gift cards and a super awesome 39in flat screen TV that was donated to Maddie's Walk! Tim's Awesome BBQ is catering and will include BBQ, baked beans, potato salad, bread and drink. Cash bar will also be available. Music will be provided by Randy Scales and Descent. Adults are $12, children 5-10 yrs are $5. Under 5 is free. I REALLY REALLY hope to see many of you there--it is going to be a blast with all of the kiddies dancing and just to be surrounded by so much support will be awesome. I mean, we all know when you get our friends and families together, it's going to be a blast: it's cheaper than a wedding present, you don't have to dress up, and it's for a super great cause :) Tickets are on sale now and they're pretty cool looking, they kind of match this blog!:) Get ahold of myself, Tyler, Penny, my momma or sister and we will get you taken care of. Thank you all so much for your support, prayers, donations and ears to listen to my rants on bad days. I pray now for clear minds for the surgeons looking at Maddie's films and for blessings for all of you.

Can't post a blog without mentioning Aubrey! The girl is rocking pre-school and comes home every day teaching us what she learned. She also changes Maddie's diapers if I'm in the middle of something, and I don't even need to ask her. I imagine it's much like wresting a little piglet down onto it's back, but when I hear both of them giggling in the living room, I pretty much know what's happening.

Short and sweet today, just like Maddie :) I'm just feeling calm and can't wait to get home to hold my girls.

Love
Taylors (Meg)

P.S. There is an itsy bitsy teeny weeny spot for comments below if you have any questions or comments--Ty and I will answer them all.


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