It has been a long 2 days. Lots of information to process. Starting from the beginning:
We check in yesterday at Riley at 9:30 and Tyler, Maddie and I were taken upstairs to pre-op. We were in there for about 45 minutes where we changed her into a little surgical gown and socks. The anesthesiologist listened to her and nurse asked us questions about Mads. Then a nurse came back and took Maddie back to surgery. Maddie did so well which made it easier on us, but let's not kid ourselves here-that was hard. So we get the family and go to our surgical waiting area. The nurse is supposed to come update us once an hour and it is a 4 hour surgery. Not even 10 minutes in and we were called by the nurse: Maddie was fine but he looked at the arthrogram (x-ray with contrast) and our surgeon wanted to talk to us. We pretty much fly up there and wait for him to come out. He first says "Maddie is fine but this is something I've never seen before, and I've done a lot of these." It turns out that Maddie has a bunch of unknown tissue between the ball and socket. He isn't sure if that is vital tissue like cartridge or if it's fatty tissue that can be removed. Also, Maddie's sockets are smaller than normal. So 2 challenges we are facing with her hips: 1) what is this tissue and can it be removed? 2) will the ball even fit into the socket? So before our next hip surgery to correct them, we have to get an MRI which she will also need to be sedated for. Which brings me to the end of day 1, and why we stayed overnight.
After Maddie woke up from her surgery she was obviously upset, but I noticed she was pulling pretty hard to breathe. They ended up giving her a racemic epinephrine to help with the swelling of her throat, caused my being intubated during surgery. Since they did that we had to stay overnight for observation to make sure she didn't need another treatment, which she didn't thank GOD. Usually 1 treatment knocks it out so I would have worried if she needed another. We were sent home with steroids to help with the swelling. She does sound so much better today. The pulmonary doc came by this morning and let us know that they would like to broncoscopy before she goes under anesthesia again, to see if there are any biological abnormalities that would have caused that reaction to being intubated. Once we get the all clear from the pulmonologist, we can schedule the MRI to see if correcting Maddie's hips are an option.
Seriously, I know it can be worse. I saw worse while we were at Riley. But this is hard. Momma is struggling with the new revelations each day, new surprises and new struggles. The hip dysplasia doesn't bother me right now but her breathing does. Maddie is just perfect to me so I hate that she has to go through these things. Maddie is also slow at gaining weight and has only gained a little over a lb in 3 months. I don't know if that's because her body is busy fighting another issue that we have yet to find or if that's just how she is. Her sister was slow to gain weight and really ramped up around age 2. All of this combined just has me all worked up and worried. We are on our way home now so maybe being home will help me:)
Thanks to everyone for their support. Maddie has a long road ahead of her-this week didn't go how we expected at all.
Megan
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